the funds will be used to help more rare disease patients.

from America "Ice Challenge" has been in the China Cheap Chiefs Jerseys social media on the reading quantity is close to 4000000000 times, a wave "V" to lift the bucket, calling attention to ALS (commonly known as freezing man), and contributions to the rare disease aid organization "China porcelain doll rare disease love center".

"donations to help ALS why to 'doll'?" "Porcelain doll, with the fund" contributions received amount exceeded 8000000 yuan, many people Cheap Packers Jerseys began to question "gradually frozen ice challenge" donation can really help people getting cold. The porcelain doll organizations responsible person said in an interview with reporters, the funds will be used to help more rare disease patients.

"worry gradually frozen people": donations "robbed"

public confusion "gradually frozen people" and "porcelain doll"

"worry gradually frozen people": donations "robbed"

"'Ice Challenge' to China, we were robbed!" On the evening of 25, in the gradually frozen people, families and volunteers to set up QQ group "of the Chinese people getting cold house", newly diagnosed ALS patients in Shandong "a brother" Cheap Bengals Jerseys sent a message a year ago.

one stone arouses 1000 billow, many "diving" members "spit out".

"the money go? Few patients receive welfare organizations help." From a Inner Mongolia netizen "eternal" wrote, he is a member of the family of ALS patients.

"this is caring for gradually frozen people care, funds can only be used for ALS, porcelain doll has Cheap Texans Jerseys no right to use this fund." Heilongjiang's "sunflowers" said, this was her second years with ALS.

for the porcelain doll rare disease care center responsible person call "used the money to help more rare disease", a lot of people getting cold and family does not agree.

"ALS is not a common diseases, freezing man is weak." In three years of Shandong netizen "old shoes" wrote.

of the two special assistance gradually frozen funds of people, China Welfare Foundation freezing Man United Way Center for the netizen "raindrop" says when accepting a reporter to interview, at present gradually freeze on donation groups to widespread doubt, however, that gradually frozen people worry about is than to donate, the two rare disease confuse the concept of ALS and the "porcelain doll".

"ALS in the diagnosis, treatment and assistance are in great need of popularity to the public, so the only so much, Cheap Rams Jerseys we worry about the confusion between ALS and common rare disease concept will have adverse effect on future relief work." "Rain", she also is a member of family members of patients with amyotrophic lateral sclerosis.

She pointed out that

, ALS incidence rate is very low, so the community on this kind of disease cognition confusion, but thousands of authoritative hospital patient database confirmed, confusion may enable more people to delay treatment.

"we want real ALS patients and professional >